Published October 8th, 2016 by

For those of us who have survived something like the flesh-eating bacteria or who are living with a debilitating disease or physical condition, it’s good to get a fresh perspective from someone like Cindy Martinez. She is:

a Gwinnett County woman [who] simply doesn’t have the words “I can’t” in her vocabulary. Source: Flesh-eating bacteria survivor inspires others – Story | WAGA

These kinds of stories can, at first, seem a bit discouraging for someone like me, who will never be able to accomplish the feats that Cindy has. Others with multiple amputations may just want to give up after reading an article like this.… Read the rest

Published April 25th, 2016 by

It’s great to see someone battle back after their ordeal with necrotizing fasciitis and a brush with death.

Haxton had been an elite rower in high school at Upper Arlington and for months after his illness, Blake had no plans to try adaptive rowing. But with some urging, he discovered the sport and quickly realized he was a natural. He was soon among the best in America.

We share a similar perspective, which may come from extended time unconscious or in a coma: the ordeal is worse for family and friends, watching this disease devour us in real time, while we are “off somewhere.”

We wish Blake Haxton the best in his competition!… Read the rest

Published February 6th, 2016 by

Back in October, I wrote about an injury to my reconstructed left leg that left a hole over my superior and inferior retinaculam (top of my foot, at the ankle), which revealed my tendon, sliding back and forth, as I moved my foot (shivers). As a necrotizing fasciitis survivor, one becomes something of a wound care specialist and, though I’ve gotten along treating myself for nearly 20 years, this one required more expertise than I have.

So, I visited my general practitioner to get a referral to a plastic surgeon, because I felt a graft may be required. But, the wound began coming together by that time and my GP was able to really help it out with some minor surgery in his office.… Read the rest

Published November 28th, 2015 by

This week I’ll be heading back to the Sierra Nevada Memorial Hospital Wound Healing and Hyperbaric Medicine Center to consult with a plastic surgeon on the skin ulcer over the tendon on my foot. A couple weeks ago, I was leaning toward a full-thickness skin graft to cover the area and get some more tissue over the tendon. Now, the wound is healing well and I’ll be surprised if the plastics man will suggest a graft. It’s looking good.

For those of us with extensive injuries from necrotizing fasciitis, this is part of a life-long process that can often be discouraging or downright depressing.… Read the rest

Published November 15th, 2015 by

A few weeks ago, I wrote about a wound I have on my tendon. I visited my GP and he did a bit of minor surgery and wound care on the hole over my tendon. It’s looking really good. But, he’s consulting with a plastic surgeon to see if I may need a full-thickness graft over the area. If I do have surgery, it would be the first since I left the hospital back in 1998. I had amazing results in the reconstruction of my leg and didn’t have to return to cover problem areas or releases on the keloid scarring around my joints.… Read the rest

Published October 25th, 2015 by

IMG_1133Surviving the flesh-eating bacteria is an ongoing process. Once you make it past the initial 72 hours and find yourself still in the land of the living, dealing with the sometimes devastating effects can be challenging, whether the wounds are great or small. Often, I’ll post stories about those who have overcome incredible loss from this disease and, in light of their challenges, I see my wounds as being on the small end of the spectrum.

Denise has always wanted to visit the garden island of Kauai, in the Hawaiian Islands. So, we flew over there earlier this month. I thought I would try paddle-board surfing while we were there and Hanalei Bay is ideally suited for a first timer.… Read the rest

Published August 13th, 2015 by

NF Business CardThis is my new business card, which I designed in a hurry for a speaking engagement. My son provided the artwork over ten years ago and he did a great job!… Read the rest

Published May 21st, 2015 by
Published April 11th, 2015 by

You may have read about Aimee Copeland back in May of 2012, when she contracted Necrotizing Fasciitis (NF) from an injury involving a homemade zip line. She suffered overwhelming sepsis and multiple amputations. Here is a very encouraging and inspiring update:  The Evolution of Aimee Copeland | Emory Medicine Magazine | Emory University.

Actually, it’s a fairly detailed story that covers different aspects of her experience, focusing on what it’s like to live a different  sort of life, post-NF. There’s a bit of science here, too, which points to the benefits of living in these times, when victims of devastating events can return to a normal life.… Read the rest

Published April 8th, 2015 by

When I saw this woman in her Jobst garments and mask, it brought back a flood of memories. Many victims of necrotizing fasciitis are treated in burn units or go through some kind of plastic surgery and reconstruction. For skin grafts, Jobst pressure garments act as a second skin, flattening the scars, aiding the vascular system, and helping the sub derma to recover.

I wore them from the tips of the toes on my left leg, like a bicycle short on my right leg and all the way up to my chest in a “tank top” style suit. I had some serious keloid scarring at the donor sites on my rib cage.… Read the rest

Published April 8th, 2015 by

NF T ShirtAre you a necrotizing fasciitis survivor? Then you can be a traveling billboard for the National Necrotizing Fasciitis Foundation and support them financially, at the same time. I got my t-shirt last week and it fits just right. Order yours here.… Read the rest

Published February 6th, 2015 by

So, The National Necrotizing Fasciitis Foundation came up with this cool graphic. I like it – I see God as the Superpower behind my survival. But, he’s more than a power, He’s a person and we have seen His glory in the face of Jesus Christ.

Anyway, why quibble? Maybe you don’t believe in God. But, those of us who have survived NF are just grateful to be alive and thankful for the caring, skilled hands of the physicians and caregivers who worked so hard to save us. We are also blessed by the support and prayers of family and friends — those other superheroes.… Read the rest